I saw the NP at the Neurologist's appointment on June 21, 2012. While going over all of my symptoms, just as predicted by other people in the Lyme community, she basically laughed and said that it is SO RARE and mostly in the Northeast of the USA. Yea, same song and dance as what I was told! *sigh*
What could I do? I need serious help so I just continued to tell her all of my most recent symptoms .... terrible shooting pains basically everywhere in my body, weakness in my back and hips, and most troubling, more balance issues! She did her neurological exam but I was shocked that she didn't do anything with me standing to check my balance. WHY NOT? I have "no idea"!
So, although her exam puzzled me and she definitely wasn't buying the Lyme Disease suggestion, she did order lots of bloodwork and most importanly an MRI of my brain and spinal cord (cervical). She also gave me a prescription for Gabapentin (generic of Neurontin) to help with my pain and told me to come back in a month in order to give the pre-cert and all labs time to be completed.
I had my MRIs done on June 28, 2012 ... boy, were they nervewracking! I was told it would probably be Monday (tomorrow, July 2nd) before the results would be back. In the meantime I had my follow-up appointment with the neuro moved up to July 10th! I did NOT want to wait an extra 2 weeks to get my results!
Since my 1st neuro visit, just over a week ago, I have had lots of pain and more troubling symptoms. I have a bad headache pretty much daily with lots of sharp stabbing pains in my head, temple, around my eyes and even in my face at times. I have also had what I would call a mild stiff neck although my neck / back of head/ muscles are very sore when I turn my head from side to side. I am so worried that I have some type of meningitis forming and almost went to the ER one night. It took 2 Ibuprofen and 2 pain pills to finally make it better enough to where I didn't feel like I was in a life-threatening situation!
Thankfully, today I had a little more energy but now my lower back has been hurting significantly all day and at one point my right knee was as well. Right now (bedtime) I am starting with my daily / nightly headache so it is time for my pain medication.
I am assuming that if something really bad showed up on my MRI that someone would call me ASAP to let me know! Praying that I don't get that call!!!